Hereditary Angioedema ( HAE ) is a very rare and potentially life threatening genetic condition that occurs in about 1 in 30,000 people, HAE patients are missing a plasma protein called C1 inhibitor. We have edema ( or swelling ) in every part of the body - including hands, feet, face... We can also have excruciating abdominal pain, nausea and vomiting from swelling in our intestines. Swelling in your throat is very dangerous because you can suffocate to death. Which is what happened to Lyndon at age 12 in 2004.
PLEASE JOIN US to raise awareness of HAE in Lyndon's sweet memory. All proceeds go to the US HEREDITARY ANGIOEDEMA ASSOCIATION for research toward a CURE!