Hello friends and family,
I have been wanting to do a fundraiser for quite a while now. This fundraiser is not just going towards anyone but, for my younger cousin Dante. This little guy has so much heart, energy and life to him. I want to raise enough to get him the vest system. The inflatable garment inflates and deflates rapidly, applying gentle pressure to the chest wall. This works to loosen and thin mucus and to move it toward the larger airways, where it can be cleared by coughing or suctioning. Now these are not cheap and averaging around 10,000 to 20,000 dollars. My goal is to raise money is to run from Edmonton to Grande Prairie. This is approximately 462 kilometers depending on where I start. This i am not running in one going. I will be stopping at places, such as Whitecourt and Valleyview to get some sleep. I will have someone driving alongside me to make sure i am okay and bring me food and water. If anyone would like to help out in any way please feel free to call or message me at (780)933-6817. Even if you might know a business that would be willing to help out as well.
This is what cystic fibrosis is:
Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. There is no cure.
Cystic fibrosis causes various effects on the body, but mainly affects the digestive system and lungs. The degree of cystic fibrosis involvement differs from person to person. However, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, eventually causes death in the majority of people who have cystic fibrosis.
Typical complications caused by cystic fibrosis are difficulty in digesting fats and proteins; vitamin deficiencies due to loss of pancreatic enzymes; and progressive loss of lung function.
It is estimated that one in every 3,600 children born in Canada has cystic fibrosis. Almost 4,000 Canadian children, adolescents, and adults with cystic fibrosis attend specialized CF clinics.
The finish will be held at Muskoseepi Park! I have a lower back injury so until then I will be recovering and getting prepared for this run. This will take me a while to raise this money and plan out the event. Thank you for your support!